Remote Symptom Assessment in Ambulatory Palliative Care: User-Centered Development of an mHealth App.

TitleRemote Symptom Assessment in Ambulatory Palliative Care: User-Centered Development of an mHealth App.
Publication TypeJournal Article
Year of Publication2026
AuthorsMindlis I, Bivona-Maldonado E, Yu Z, Ekwebelem M, Banerjee S, M Reid C, Blinderman CD, Shalev D
JournalJ Palliat Med
Volume29
Issue7
Pagination939-945
Date Published2026 Jul
ISSN1557-7740
KeywordsAdult, Aged, Aged, 80 and over, Ambulatory Care, Female, Focus Groups, Humans, Male, Middle Aged, Mobile Applications, Palliative Care, Pilot Projects, Symptom Assessment, Telemedicine, User-Centered Design
Abstract

BACKGROUND: Ambulatory palliative care (PC) focuses on managing complex symptoms, yet assessment relies on recall during infrequent visits to manage daily fluctuating symptoms. We aimed to design a PC-anchored remote symptom assessment (RSA) tool with patients and clinicians.

METHODS: We used user-centered, Agile design to develop and iteratively refine EMA-PAL, a web-based RSA prototype. Patients and clinicians (N = 14) from an ambulatory PC clinic participated in staged prototype development and testing through focus groups and interviews.

RESULTS: EMA-PAL features patient- and provider-facing interfaces that visualize daily Edmonton Symptom Assessment System (ESAS) scores, highlight severe symptoms, and support shared review during visits. Participants endorsed EMA-PAL's potential to enhance communication and workflow efficiency and identified priorities for future development (medication tracking and workflow integration).

CONCLUSION: This exploratory pilot suggests that PC-anchored RSA tools such as EMA-PAL may help address gaps in symptom assessment and timelier and patient-centered symptom management in ambulatory PC.

DOI10.1177/10966218261441208
Alternate JournalJ Palliat Med
PubMed ID41963240
PubMed Central IDPMC13535563
Grant ListK76 AG083287 / AG / NIA NIH HHS / United States
T32 AG049666 / AG / NIA NIH HHS / United States
UL1 TR002384 / TR / NCATS NIH HHS / United States