| Title | Remote Symptom Assessment in Ambulatory Palliative Care: User-Centered Development of an mHealth App. |
| Publication Type | Journal Article |
| Year of Publication | 2026 |
| Authors | Mindlis I, Bivona-Maldonado E, Yu Z, Ekwebelem M, Banerjee S, M Reid C, Blinderman CD, Shalev D |
| Journal | J Palliat Med |
| Volume | 29 |
| Issue | 7 |
| Pagination | 939-945 |
| Date Published | 2026 Jul |
| ISSN | 1557-7740 |
| Keywords | Adult, Aged, Aged, 80 and over, Ambulatory Care, Female, Focus Groups, Humans, Male, Middle Aged, Mobile Applications, Palliative Care, Pilot Projects, Symptom Assessment, Telemedicine, User-Centered Design |
| Abstract | BACKGROUND: Ambulatory palliative care (PC) focuses on managing complex symptoms, yet assessment relies on recall during infrequent visits to manage daily fluctuating symptoms. We aimed to design a PC-anchored remote symptom assessment (RSA) tool with patients and clinicians. METHODS: We used user-centered, Agile design to develop and iteratively refine EMA-PAL, a web-based RSA prototype. Patients and clinicians (N = 14) from an ambulatory PC clinic participated in staged prototype development and testing through focus groups and interviews. RESULTS: EMA-PAL features patient- and provider-facing interfaces that visualize daily Edmonton Symptom Assessment System (ESAS) scores, highlight severe symptoms, and support shared review during visits. Participants endorsed EMA-PAL's potential to enhance communication and workflow efficiency and identified priorities for future development (medication tracking and workflow integration). CONCLUSION: This exploratory pilot suggests that PC-anchored RSA tools such as EMA-PAL may help address gaps in symptom assessment and timelier and patient-centered symptom management in ambulatory PC. |
| DOI | 10.1177/10966218261441208 |
| Alternate Journal | J Palliat Med |
| PubMed ID | 41963240 |
| PubMed Central ID | PMC13535563 |
| Grant List | K76 AG083287 / AG / NIA NIH HHS / United States T32 AG049666 / AG / NIA NIH HHS / United States UL1 TR002384 / TR / NCATS NIH HHS / United States |
